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A
Good Life answers the critical questions asked
by:
The
road to A Good Life involves seven essential
steps:
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A
Good Life
includes fifteen family
worksheets
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Read
this book and the light bulb goes on in a blaze of clarity. What we want
for our sons and daughters doesn't have to depend on the whims of social
services and funding programs; it depends on families regaining control of
simple, fundamental questions: what do we want? and what is a good
life?
It's
a profound shift in the way we help our children define themselves in
our families [and in] our communities. This book is joyful. It is
also sad, difficult, practical, funny, passionate and profound just
like a good life. It's clear we don't have to be recipients--we can be
creators.
Karin Melberg
Schwier, parent, writer
- Saskatchewan |
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A crash-course in my continuing education about the
potential of `people sculpted outside the mold.' A Good Life'
[gently] challenges us to create and demand the kind of life to which
every citizen--disabled and non-disabled alike--is entitled. We must use
the successful models of caring described in A Good Life to expect more,
not less, from our formal social service system.
Bonnie Sherr
Klein, writer, artist
- British
Columbia |
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In my practice as a physician
specialized in the field of disability, the issue of safety and security
for the loved one and her family often becomes the central point of their
physical and emotional health. Not addressing these concerns is almost a
sure road towards anxiety-related ailments. I am convinced that this book
could save hospitalization and medication for many of our patients.
This
is a book about prevention and efficient public health without naming them.
Physicians,
psychologists, and rehabilitation workers will find an in-depth
understanding of the issues and a practical, step by step approach to
securing a good life for the
loved one and her family.
After
reading this book, to refer and to work with a group of senior parents who
understand the issues and act upon them as the groups mentioned in the
book becomes the right thing to do.
Andre Blanchet MD, Boston, Massachusetts |
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"Safe
and Secure is an empowerment tool that has great relevance for family and
life decisions that confront every parent.
By using the worksheet in the book, parents are offered the
opportunity to contribute to their son/daughter's future and their own
peace of mind."
Annamaree
Reisch, advocate
- Australia |
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It is part theory, part workbook,
part road map. In Safe and
Secure, Al Etmanski and Vickie Cammack have integrated the core strategies
of person centred planning and community building with long range
foundations of legal and financial issues in care for a family members
with a disability. They have
also distilled more than then years of experience in facilitating
self-directed supports. Most
resources usually have one or the other.
The book has been a wonderful
resource for individuals and families in New Jersey who are developing
long range supports in our self determinations process. (Optional) If what
works in British Columbia also helps in New Jersey.
There are lots of places in between where it can also be used.
Bill Gaventa, Advocate, activist, Executive
Secretary Religious Division AAMR - New Jersey |
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As a parents and as an assistant
to other families engaged in planning for the future of loved ones with
disabilities, I frequently refer to Safe
and Secure. It has
consistently proven a trustworthy and user-friendly guide, including
practical recommendations, creative solutions, and valuable worksheets.
Families who have drawn on its
expertise feel more confident and competent about long-term planning.
I eagerly anticipate A Good Life and its contributions to the
disability community.
Nancy
Meltzer, parent, advocate, Senior Family Caregiver Support Project, ARC
Seattle |
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You want to do
everything you can for your challenged child.
Safe and Secure enables you to do this even after you’re gone,
providing continuity and security for the future.
Setting up a Personal Future Plan for your child enables both of
you to feel secure right now. I’m
doing it for my son.
Betty Jane Wylie, parent, writer - Ontario |
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Safe and Secure has enabled me to
visualize a future for my daughter as a happy and loved member of her
community in which she is carefully supported by a network of friends and
advocates. The valuable
information, ideas and worksheets provided in Safe and Secure have also
motivated me to work towards making this vision a reality for Claire.
Wendy Vickery, parent - Nova
Scotia |
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Safe and Secure, with its
practical tips and technical advice, provides much needed information and
guidance to families who have a relative with a disability.
I encourage all families who have vision and determination in
creating a future for their children, to become familiar with this
outstanding resource.
Marilyn Kuna, parent, Self
Determination Initiative - New Jersey |
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Having
my first read of “A Good Life”, I was touched, troubled, tantalized,
and then tranquil, with a sense of direction, hope and peace for the
future.
So
easily we live in denial until something unforeseen happens that cracks
our false sense of security. Living
through love in forward planning and preparation is a gift to our child
and family as this beautiful book guides.
This
book is a love story of family and a love story of parents offering to
other parents a path to peace of mind and heart.
Living life in interconnectedness is like a relay race.
It is ‘doing’ as a collective, and passing the relay torch on
for others to carry forward. As
this book describes, the torch is our love and caring for our child or
relative, and the relay is our loved ones’ live journey.
To pass the torch on we must learn to ‘let go’ and ‘let
others’. And for me, this
is the message woven in “A Good Life”, the gift of love expanding and
enduring beyond.
Cathy
Anthony, Executive Director, Focus on Families, British Columbia |
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We all long for the good life.
PLAN's central concept is that the good life
for people living with a disability has little to do with rights and
services and everything to do with friends and choices.
Safe and Secure is a wonderful
resource. It provides step by
step guidance on creating a vision of the future and practical solutions
to bring that vision to
fruition. It challenges families to dare to dream and then illustrates how
dreams shape reality. With a
wealth of anecdotal evidence, it is inspirational... and an easy read!
Nicole Santilli |
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